Links for Thalassemia

 NAME OF WEBSITE
 DESCRIPTION OF WEBSITE
 Thalassemia.com

"Welcome to the website of the Northern California Comprehensive Thalassemia Center at Children's Hospital Oakland. We have been working hard for the last year to bring comprehensive thalassemia information to remote patients, providers, students and the general public that is simpleto navigate through and easy to digest. We have modelled the site after our own care program, involving all aspects of care, from medical treatment to psychosocial issues, home care to patient/peer support. (this paragraph from the website)" This is one of the few sites for this disease. We must give this site a 10. Site discovered by Karissa Olson. Thanks Karissa!

National Heart, Blood and Lung Institute

Kinda dry, but has lots of the info you are searching for.

Cooley's Anemia Foundation

Definately worth a look!

National Human Genome Research Institute

Go to this site to learn more about the genetic factors associated with someone getting this disease.

 

 

 

 

 

 

 

 

 

 

To add links to the Thalassemia links page, send Curtis email.
Copyright ©Curtis R. Schneider, 2008. All rights reserved.